Objectives

 

- To claim global treatment of affected people.
- To provide families with information on the causes, consequences and treatments of the malformation.
- To promote of the improvement of the educational development, especially of the language, including the professionals of the

  education.
- To claim to the public authorities for the promotion of programs to support and study the malformation.
- Promote the participation of public and private institutions in the programs of the Federation.
- Development of programs of mutual aid and self-help, and that help to the solidarity and participation.
- Promotion of clinical research and studies on the causes, treatments and consequences of the malformation.
- Development of joint projects of associations.